Tag: invisible disability

Invisible Fight Photo Gallery

#myinvisiblefight
“I struggle with more than just ‪#‎narcolepsy‬ — but this is a very visible reminder of ‪#‎myinvisiblefight‬” – Gina

 

I have received some really powerful photos from people showing their #invisiblefight with illness and/or pain. Check out the gallery of images so far! You still have time to submit a photo in order to be entered in a draw for a pair of Spoonie Earrings in honor of Invisible Illness Awareness Week.

*Read submission details here.

Join the 21-Day Chronic Pain/Illness Photo Project

chronic pain photo projectI am hosting a 21-Day Chronic Pain/Illness Photo Project in a closed Facebook group starting Monday, April 27, 2015. Each day there will be a photo prompt related to chronic pain/illness. Participate as much or as little as you would like. No experience necessary. Just use your phone-camera, snap away and share in the group.

If you are interested in joining the project click on this link.

Follow Chronic Pain Life on Instagram – @chronicpainlife
Hashtag your chronic pain photos with #chronicpaininfocus.

30 Things About my Invisible Illness You May Not Know

frida kahlo

invisible illnessTo help promote Invisible Illness Week I am sharing the MeMe:

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Internal Disc Disruption/Derangement (IDD)
2. I was diagnosed with it in the year: 2012
3. But I had symptoms since: 2008
4. The biggest adjustment I’ve had to make is: Not being able to participate in even the most normal day-to-day activities as I am unable to sit, stand, walk etc. the majority of the time.
5. Most people assume: I look great so I must not be as disabled as I am.
6. The hardest part about mornings are: Waking up and realizing a have another day to persevere through.
7. My favorite medical TV show is: I don’t have one.
8. A gadget I couldn’t live without is: my camera.
9. The hardest part about nights are: waking up from dreams in which my body is working normally.
10. Each day I take __ pills & vitamins. (No comments, please) A couple of non-narcotic meds and many vitamins.
11. Regarding alternative treatments I: have spent thousands of dollars trying everything with no results…acupuncture, acupressure, cranio-sacral, Reiki, healing touch, plasma injections (that athletes use), prolotherapy, body-mind therapies, visualization, etc.
12. If I had to choose between an invisible illness or visible I would choose: hard to choose…I am grateful that I look “normal” but daily I wish I had a way of showing people what I am truly dealing with each and every second of the day despite my “normal appearance”.
13. Regarding working and career: So sad to know that I will never have either again so I have to find purpose some other way which is hard to do when I spend 90% of my day laying horizontally.
14. People would be surprised to know: that to get anywhere I usually have to lay horizontally in the back seat of my car and have someone drive me.  
15. The hardest thing to accept about my new reality has been: I may be this disabled forever and I am only 39.
16. Something I never thought I could do with my illness that I did was: keep on persevering through it all.
17. The commercials about my illness: there aren’t any.
18. Something I really miss doing since I was diagnosed is: sitting…to drive, to eat my meals, to watch a play, to fly, to watch a movie, to watch my nephew’s play sports, etc.
19. It was really hard to have to give up: the reality that I will never travel by plane ever again.
20. A new hobby I have taken up since my diagnosis is: blogging.
21. If I could have one day of feeling normal again I would: hop on a plane to Kenya…a lifelong dream.
22. My illness has taught me: life is not fair, good health should be cherished every single moment, nothing should be taken for granted.
23. Want to know a secret? One thing people say that gets under my skin is: “have you tried…”
24. But I love it when people: say “Wow, you are so strong to handle how you have to live your life. I bet not many people realize how hard it must be.”
25. My favorite motto, scripture, quote that gets me through tough times is: “At the end of the day, we can endure much more than we think we can.” – Frida Kahlo
26. When someone is diagnosed I’d like to tell them: stay strong, no matter how alone you feel, you are not. 
27. Something that has surprised me about living with an illness is: how there can be so few medical solutions or answers to my situation and so many other people’s. 
28. The nicest thing someone did for me when I wasn’t feeling well was: My Mom has repeatedly dropped everything to take care of me and comfort me.
29. I’m involved with Invisible Illness Week because: I really want people to learn not to make any assumptions about someone’s health based on their external appearance.
30. The fact that you read this list makes me feel: happy.

Peace and love,
Stephanie